Case Histories of Acupuncture - Down Syndrome

Introduction

In 1994 when I first came to the holistic healing centre in Bibwewadi, Pune, India, I was not sure what I would contribute. I had a background in anatomic and clinical pathology. I did a full research paper on the action of hormones on tissues and discovered that under certain hormonal conditions, the tissues in the body undergo a change which can be seen microscopically. For 24 years, I had worked in a leading hospital in Delhi, as a clinical and an anatomic pathologist and for the last 10 years as the medical director.

I am a cancer survivor, and so was advised not to practice Pranic healing or Reiki as I may be affected by the patient’s vibrations.  The only option left was acupuncture. I trained in acupuncture and started a small acupuncture healing centre. I had success with paralytic patients, and quite a few patients with arthritis of various joints.

One day my sister, who was the principal of a large school an hour away from the centre, requested me to do acupuncture on a child who was in her school: a girl with Down’s syndrome.  I explained to her that Down’s is the result of the special genes the child has and nothing can be done to change those genes. For 3 months, I was able to ward her off from what I thought was a futile experiment.

However one day the parents and the child arrived at the healing centre and requested acupuncture—saying they were fully aware that no change may take place, but they wanted to try acupuncture for her. They had already taken her for homeopathy and to a pediatrician and realized that nothing could be done. They were not able to keep the child in school and were up against a blank wall. The girl had all the characteristics of a Down’s, but in a greater degree.

I started acupuncture but could not complete the full 10 day course of acupuncture, as on the 6^th day, I was called urgently to my old hospital to sort out a difficult problem. After this I completely forgot about the child till 3 months later, when her parents returned, reporting marked changes, and requested another acupuncture session.

The acupuncture sessions were continued on a yearly basis, with unexpected and remarkable results.

 

This child that had little or no spontaneous activity, and could only say a few unintelligible words—was now speaking freely, socializing with friends, and had expression on her face.

This experience prompted us to do acupuncture on more children with Down’s syndrome, and later also on other challenged children: those with dyslexia and autism. The following paper is based on our experiences.

A detailed discussion of our observations in the case studies is followed by discussion and hypotheses that seek an answer to the burning question:



Why and how does acupuncture help these children?

Children with Down’s Syndrome

Clinical Observations

HISTORY

In 1866, John Langdon Down described the features of these children and referred to them as Mongoloids as they resembled the Mongolian people. In 1960, this terminology was dropped and replaced by the term Down’s syndrome after John Langdon Down.

In 1959, Jerome Lejeune in France and Patricia Jacobs in England discovered in their chromosome study that these children had 3 copies of chromosome 21 and termed it Trisomy 21.They ascribed the condition of Down’s syndrome to be due to this Trisomy 21.

The test for chromosome study is called Karyotyping.

A great deal of research is being done to ascribe the characteristic features of these children to a particular gene. To date, no gene has been fully linked to any features associated with Down’s syndrome.

A few points for consideration are:

1. 5% of children with Down’s syndrome have a normal chromosome pattern.
2. In the 95% of children with Trisomy, this Trisomy is not inherited, but caused by a mistake in cell division during development of the ovum, sperm, or even the embryo.
3. The second child may not be affected.
4. The second child has a 12% risk to be affected when chrosome21 is translocated to chrosome14 in the mother (Robertson translocation).

Features of children with Down’s syndrome

1. A flat face with upward slanting eyes and with epicanthic folds, giving the mongoloid appearance.
2. A flat bridge of the nose.
3. A small mouth and a protruding tongue.
4. A small head with unusually shaped ears.
5. Short broad hands and a single palmar crease.
6. Broad feet with short toes.
7. A short neck.
8. Poor muscle tone with hyper flexibility of the joints.
9. Lower than average cognitive ability.
10. Lowered immunity resulting in several disease conditions.

• Respiratory diseases are a constant problem for these children. They have regular colds, coughs and chest congestion.
• Thyroid dysfunction.
• Intestinal problems.
• Heart defects especially ASD (Atrial Septal Defect).
• Hearing loss.

The frequency is approximately 1 in 800 live births. About 6000 Down’s children are born annually. All nationalities are affected.

As a result of better understanding of the condition and supportive measures, these children live longer than they did before. But they run the risk of obesity as they reach adolescence and also of Alzheimer’s disease setting in early.

Growing awareness of the condition, has resulted in institutions for support of these children and their parents in every country.

INDIA

There is the Down’s syndrome federation at Mathru Mandir in Chennai. This was started by Mrs. Rekha Ramachandran in 1984 with 6 children and now is a global venture extending a supportive helping hand to children all over the country. Rekha‘s own daughter Babli was a Down’s child and so the institution grew around her. Dr. Rekha is a member of the international federation for Down’s syndrome.

In all these centers and also at Mathru Mandir, treatment according to the child’s needs, consists of:

• Physiotherapy to overcome hypotonia
• Speech therapy
• Occupational therapy
• Counseling
• Yoga
• Special nutrients and megavitamin therapy

Various specialists are attached there as needed—psychiatrists, medical specialists of all types, physiotherapists, etc. Other treatments would depend on the individual needs of the child as for colds or digestive problems and for heart problems .There is no mention of any complementary therapy except in Bangladesh and there is only a reference to it.

At this point I refer the reader to my background as an allopathic pathologist and my surprise at seeing changes in the first child with Down’s syndrome after 6 days of acupuncture. Here follows a detailed description of these changes in that child.

 Before treatment, she had:

• A severe and expressive language disorder.
• A protruding tongue.
• Continuous dribbling and enuresis.
• She could say a few unintelligible words, and had little or no spontaneous activity.
• Her karyotyping showed Trisomy.

Three months later, her parents reported marked changes.

• Her face had changed and now she has expression in her face.
• Her enuresis and dribbling had stopped.
• Her comprehension improved.
• She was vocal and communicating with others, which she never did before.

One year later a repeat of a full 10 day acupuncture session resulted in the following changes.

• Clearly understandable speech
• No fear
• No enuresis

A repeat of the 10 day acupuncture session done 1 year later showed the following changes.

• Her aggression has gone.
• She speaks freely and can be understood.
• She is socializing with friends.

Methods used in our healing center in Pune The main method is acupuncture. Acupuncture is the science of rebalancing life energy through out the body. The energy flows through special channels called the meridians. There are 12 meridians and these are connected with the organs in our body. If there is a problem in any organ, there will be an impairment of energy flow in the corresponding meridian. Each meridian also has an emotional attitude related to it. There are specific points on each meridian where the negative energy collects. These points are stimulated by very fine needles, which are inserted in these points. Other methods of stimulation can also be used. The main method is acupuncture using fine steel needles which are delivered to the acupuncture points using a guide with a spring .Using the guide minimizes any possible pain from the needle prick. The needles are attached to an acustimulator powered by a 6 volt or 9 volt battery. The acustimulator is kept for 1\2 an hour. Usually a few points from each meridian are given. For speech and the tongue special points around the mouth are given together with Broca’s area. The acustimulator is set up before hand by marking the beginning of the electrical stimulation on the instrument with a special marker using another child who is older. At 1, 2 or 3 years, the children will not be able to let us know the beginning of the electrical stimulation .So we mark the stimulators before hand. We have noticed that when the stimulator is put on, the child is quiet and even falls asleep. Sedation before the acupuncture is used to quieten the child. We normally used Zapiz (Clonazepum) as it is a mild sedative, and the strength would depend on the age of the child. A painkiller relaxes the child. And often it is a better option to a sedative. After a while the children do not need a sedative or a painkiller. Some do not need either one from the start of treatment. We suggest 2 sessions annually for the first 2 years. Each session is 15 days. Then 1 session annually till just past puberty or 18 years. However this would depend on the response of each child to treatment If there is a hesitancy to use needles, there are various other options today such laser, tapping and electrical gadgets. The main principle is stimulation to the acupuncture points. Additional Therapy Homeopathic medicine For aggression—Absinth, Aethusa cyan, Agaricus Muscaris, Belladonna For sadness—Aurum met and aurum sulf For colds—Bellis Perennis, Euphatorium Perforatum, Justica Adhota, Teucrum marum, Wyethia. All the children need speech therapy and counseling. This is provided by other centers. From my experience, all the mothers need guidance and counseling as well. Each child’s story follows with the number of sessions given, and the changes seen after each session. The mother’s history during that pregnancy is also included.

NOTE ALL NAMES HAVE BEEN CHANGED


Case Studies

TOMMY arrived at our centre when he was 6 years old. His milestones were delayed. He could not speak or walk; his mother carried him all the time. He always had a cold or cough. He was getting daily massages. His karyotyping was not done.

Mother’s history during the pregnancy The mother reported that this was an unplanned child and the father wanted abortion as they had many children already. She did not want an abortion and there was constant disagreement. She was weak after the delivery. The father was not happy about this boy.

Observations at our centre His face was mongoloid and had a vacant expression. He was not aware of his surroundings or people around. He had a cough and cold. He could not walk or talk.

Treatment  Session 1 (June 22nd–3rd July 1998)  He took 10 days   acupuncture  during this period. The major change was in his face. The vacant expression disappeared and he  looked normal. The driver who saw him before could not recognize this boy after acupuncture. The child was more aware of his surroundings and his mother. His cold and cough was less. Session 2   (July 10th–27th July 1998) He was able to take 10 days of acupuncture. His aggression had decreased considerably. He was able to stand with help. He hardly had a cold now. However the mother found him stubborn. Session 3   (January 25th–February 10th 1999) His mother was pleased after this session and reported the following. He is smiling now and friendly. He is active and attempting to walk. He is also attempting a few words. He is taking an interest in everything around and even cleans himself with the swabs. According to his mother, his stubbornness has increased. This child did not return as the father was not interested in continuing acupuncture. It was the mother’s wish and she was bringing him without the father’s knowledge.

YASMIN was brought to our centre at 6 years. Her chromosome study showed Trisomy. Her muscle tone was low. Even at 3 1\2 years, she did not talk or walk. She was a blue baby. On the 16th day after birth, she had a heart operation.  Mother’s history during the pregnancy  The mother had a difficult time during this pregnancy as she was being harassed by the nursing superintendent at the time. There were constant clashes as at that time she was only an assistant. She was put on night duty and was angry and unhappy.

Observations at our centre The child had mongoloid features. She spoke with a lisp. She had difficulty walking because of foot drop. She stuck her tongue out constantly. She was shy. She had a constant cold. She was backward and her comprehension poor.

Treatment  Session 1 (October 26th–November 6th 1998)  She took 10 days of acupucture during this period. The mother was nursing directress of the hospital and could not bring her daily. After the 3rd day, the face had changed and she looked more normal. On the 5th day, we noticed that dribbling had stopped. Towards the end of the session, the tongue stopped protruding. Her comprehension had improved. After one more session, the mother could not bring the child. After the 2nd session, her shyness had decreased. She was more at ease with other children in class. Her speech had improved and we could understand her. The mother seemed satisfied with the changes that had taken place.

BELLA was brought to the centre by her father in January 2000. She was 5 years old.  Mother’s history during the pregnancy When the mother was pregnant with Bella, the family was going through a difficult time. Their business was failing. They were also shifting to another state, and starting a new and different business. This took a lot of energy and there were emotional ups and downs during that time.

Observations Her father reported: She cannot talk and only babbles. She had a vacant look and was not aware of her surroundings or people around. There was a lot of drooling. Her mouth was open and her tongue stuck out. She was very aggressive. Her face had a mongoloid appearance. She refused her mother’s breast. She had constant colds. Her karyotyping was not done as a pediatrician told the father there was no point as the child is definitely a Down’s syndrome and there is no treatment for this condition.

Treatment  Session 1 (January 3rd–January 14th 2000)  She was able to take 10 days of acupuncture. For the first 4 days, Bella was aggressive and uncooperative, but a few points were given. Later with mild sedation, she fell asleep and the full complement of acupuncture points were given. On the 10th day, we noticed that there was already a remarkable change in her face and it looked more normal. Her father reported the following changes: Her face had lost its vacant expression and the mongoloid appearance and was almost normal. Drooling of saliva had stopped. There was considerable reduction of her aggression. She was attempting speech.  Sessions 2, 3 (May 3rd–May 16th 2000, November 6th–November 18th 2000)  She had 2 more sessions in the same year. The following changes were reported: She was active and alert. She was quite aware of her surroundings. She recognized people. She had started speaking in class. Her cold and blocked nose was still there.  Sessions 4, 5 (May 14th–May 25th 2001, July 16th–July 24th 2001)  She had 2 more sessions in 2001. The school reported: She was now more sociable. Her handwriting was good. She was a good dancer. She was still very aggressive.  Sessions 6 (April 29th–May 10th 2002) The following changes were reported: Bella spoke with ease in Hindi at home and makes full sentences. She was doing well in class and the teachers understand her when she speaks. The school was happy with her progress. However the teachers were concerned about her bouts of aggression. Her speech was still slurred, though her friends and teachers could understand her.  Session 7 (October 20th–October 29th 2003) In 2003, the school did not promote her to the next class as she was finding it difficult to cope with her studies and compete with normal students.  Session 8 (May 10th–May 21st 2004) After repeating a class, she was better adjusted in school and coping well.  Session 9 (October 31st–November 12th 2005) No specific changes were noted after this session.  Session 10 (April 17th–April 29th 2006) She started menstruating after this session.  Session 11 (April 23rd–May 2nd 2007) She got 63% marks in her final exam. She was promoted to Std. 5, but is still weak in mathematics.  Session 12 (May 5th–May 21st 2008) For this session, the mother was present. The parents reported: She spoke more clearly and was happy. She was at ease with herself and aware. She had poise and does not look like a Down’s child anymore. She still had bouts of aggression. The school reports that she was very compassionate and reaches out to handicapped children in class. She took responsibility for small errands in the school. She talked sensibly and answers appropriately and her speech was clearer. Her awareness has improved to a point where she can say when the stimulation has started during acupuncture.  Session 13 (May 25th–June 12th 2009) Her speech was clearer than before. She had been promoted to the 7th standard. The parents reported that she does not take the initiative to do jobs in the home.  Session 14 (April 27th–May 12th 2010) She took the session well as usual. She has grown and is now in the 8th standard. She passed her exams without any extra coaching. She is happy and adjusted. However she’s still weak in mathematics.

NIRMALA was 2 years old when she arrived at the centre. She had delayed milestones.  Mother’s history during the pregnancy The mother married against her family’s wishes. She has eczema of her whole right arm, and admits she is an angry woman.

Observations She was holding her neck up only at 7 months. She started sitting up only at 1 year. She was walking only at 2years. When she walked, the ankles make a cracking sound. She expressed anger by banging her head and biting her umbilical hernia. Her chromosome analysis showed Trisomy. She is a deaf mute. She lived in her own world and had slight Mongoloid features. She hardly ate any food—only a few mouthfuls. She always had a cold or cough.

Treatment  Session 1 (March 18th – March 28th 2002)  Inspite of heavy sedation, this child was awake and fighting the acupuncture. Only a few needles could be given on the back. She fought the needles and even pulled them out, in spite of 5 staff members holding her. However as the days went by, she was much better. Changes observed after this session of acupuncture: Her face had changed and the vacant look had gone, and expression had appeared. She was aware of her mother and her surroundings. Her appetite had increased and she slept well. She was attempting things on her own. She does not hit her head on the floor.  Session 2 (August 5th–August 16th 2002) She was still restless and fighting, but better than before. By the 4th day, the full complement of acupuncture points were given with electrical stimulation.  Session 3 (December 9th–December 20th 2002) The main changes seen: Her face had changed completely and she looked like a normal child. She was no longer aggressive and did not bang her head. She was calm and friendly. She was attempting things on her own. She had started passing stinky stools. She smiled more and tried to imitate others by moving her lips.  Session 4 (July 21st–August 2nd 2004)  She took all the needles well with mild sedation. Even the points on the face were given. She was calm and quiet. Changes seen after this session: She was calm. She plays with other children. She now cuddled up to her mother and wanted to be cuddled. The mother has another baby and an ailing mother-in-law and could not come for further sessions. She was happy about the changes as this child can now take care of herself.

MUMTAZ was brought to our centre on April 16th2002. She was 3 1\2years old. She was born on September 2nd 1998. Her chromosome study in January 1999 showed Trisomy. She was being treated by a homeopath that only treated mentally challenged or handicapped children. After a year’s treatment she did not show much change so her mother brought her to our centre as she heard about us.  Mother’s history during the pregnancy  The mother reports that she was taking auto immune injections for warts on her face, and one day she realized she was pregnant. Though she stopped the injections when she was aware of the pregnancy, she had no idea how long the injections continued during pregnancy. She did not tell her obstetrician about the injections. She vomited during the full 9 months, but took no medication .She lay in bed during the full 9 months. Vomiting in my experience is a sign of stored anger.

Observations at our centre She was too fat for her age. When she tried to walk, she would fall forward. She had marked hypotonia. She was able to say yes or no nonverbally, but could not talk. She lived in her own world and was not aware of people or surroundings. She had a flat face and slanting eyes giving her the mongoloid appearance. Her mouth was always open, but dribbling was minimal. She had a squint, but no other congenital anomalies. She was constantly getting colds and coughs. Her IQ was 53

Treatment  Session 1 (April 2002)  She took 10 days of acupucture. For the first 3 days, she smiled with every needle prick; showing complete lack of awareness of what is happening to her. A pediatric nurse was giving her the acupuncture, and she was thoroughly surprised to see her smiling at every needle prick. By the 4th day of acupuncture, the following changes were seen by her mother and us: She had lost weight and looked slimmer (she probably shed the water her tissues were holding.). Her face became smaller, lost its vacant look, and was expressive. She was now aware of her mother and all of us. She was also aware of pain with each needle, as she was crying after each prick. This was a significant change. Her aggression was now apparent.  Sessions 2, 3 (September 2002, November 2002) The following changes were reported by the mother: Mumtaz was now talking in the house and understood what was being said by those in the home. Her memory seemed to have improved as seen from her behavior. She was now able to stand up to her older brother and fought back. However she was a little more selfish than before and was not sharing her toys with others. Her stools started to give an abominable stink. (This is common to all Down’s children as they improve.)  Sessions 4, 5 (April–May 2003, October–November 2003) The mother reported the following after this session: Her extreme shyness was slightly reduced and she seemed more sociable than before.  Sessions 6, 7 (September 2004, November 2004) Her mother reported: She spoke more clearly now and answered others appropriately. Her neck however was quite stiff and she kept her head bent while walking. She now had a normal face and no more looked like a Down’s child for which the family was most grateful, especially her father. She still had a great deal of fear. If she saw a dog even at a distance, she runs away. In the centre, she did not look at us but put her face down.  Sessions 8, 9 (April 2005, November 2005.) Her speech was clearer and she expressed herself better. She was independent now; took care of herself and went to school in the bus by herself. She was doing well in school and her handwriting was very clear. She is in a school for normal children. She grasped what was being said and answered appropriately. She was more sociable than ever before and expressed her feelings appropriately.  Sessions 10, 11 (May 2006, October–November 2006) She looked normal now and there was no doubt about that. She kept her head up and looked at others, and was not as shy as before. She is only now bonding with her mother. Until this time, she was only close to her father and her brother and did not relate to her mother.  Sessions 12, 13, 14 (2007, April 2008, November 2008 ) She has grown up, but is still a bit shy and has an abnormal degree of fear. With speech therapy, she spoke clearly and freely. She looked normal now, and does not have the features of a Down’s child. Remarks: The family stays in a remote village where there is only one school and no facilities for such children. For counseling and speech therapy, she comes into our city (Pune or Mumbai) and only twice a year when she comes for her acupuncture. The mother does not want to put Mumtaz into a school for mentally challenged children as she feels the girl will only see children like her and will not change. In a normal school, she faces challenges that stimulate her. Mumtaz was shown her first photo before treatment and she refuses to accept the fact that she ever looked like that. Her mother tried to tell her that the photo was taken before treatment was started in the Bibwewadi centre. But the child says we have put someone else’s picture there. Her mother called to say she has no more fear now but does not care to socialize. This may be a family programming as the parents also do not socialize in that remote village.

JOHN DOE came to our centre at 5 ½ years on February 16th 2004. His chromosome analysis showed classical Trisomy21. At present, he is attending a school for retarded children.  Mother’s history during the pregnancy His mother reports that for some unknown reason, she experienced fear during her pregnancy, and had terrible nightmares. She also had arguments with her in-laws. She vomited constantly during her pregnancy and experienced constant burning during micturition. She has early arthritis.

Observations at our centre He had typical Down’s features with a big tongue which is always protruding and slightly slanting eyes. He did not talk, but communicates in signs. He was very restless and could not sit still. His mental age was about 1 year. He had a constant cold. From birth, he passes a stool only every 4th day.

Treatment  Session 1 (February 16th–February 27th 2004)  He took 10 days of acupucture. For the first 3 days, he woke up in a rage during the session. Later he took the acupuncture well. At the end of 10 days, the mother reported the following changes: He had lost that vacant idiotic look and there was expression in his face. His cold had improved considerably. He was able to move his tongue freely. As a result of moving his tongue, he was speaking a few words.  Sessions 2 (May 24th–June 4th 2004) His mother reported that he was very quiet for the first 2 weeks at home and never ventured out of the house. After 2 weeks, he began to open up and these were the changes seen: His speech was much clearer and he was able to speak using single words, though not sentences. He was now able to understand the material in class. He did not have a cold anymore. His tongue was getting thinner though it still sticks out. He now masticated his food with his molar teeth and no longer swallowed it whole. He seemed to have grown in stature. He was less agitated and much less aggressive. His appetite had increased and he ate more than before. She said his face had changed, but she could not put her finger on the changes.  Session 3 (November 22nd–December 3rd 2004) After this session, his mother reported the following changes: He was no longer constipated and had a normal stool daily. His understanding has improved both in class and at home. He was sociable now and mixed with other children. However, he was still stubborn. He was more at ease with himself and others.  Session 4 (May2nd–May13th 2005) This time he was at ease with the needles, but was constantly thinking of his grandmother. Changes reported seen after this session: He had finally stopped sticking out his tongue. He was now taking an active part in school functions and had started dancing. Remarks: John was sick in between and the pediatrician kept him home for a year. He decided himself not to return for acupuncture. Reports from the mother are that he is adjusting well and is happy.

KAYLIN was 3 ½ years old when he came to our centre. His chromosome study showed Trisomy confirming he had Down’s syndrome.  Mother’s history during the pregnancy His mother reported that she is a very hot tempered woman. During her pregnancy, she had violent disagreements with her in-laws, and the situation was difficult. Before this child, she had 4 abortions. She still has difficulty with her in-laws.

Observations His mother reports the following about him. He did not chew his food but swallowed it whole. He had urinary incontinence. He made noises in his sleep and was restless and rolling about. He often beat himself and hit his head on a wall. When angry, he threw things at people. He had frequent colds and coughs. His tongue was always sticking out. He had carious teeth. Observations at our centre He had small unusually shaped ears. He had a small mouth with the tongue sticking out. HeHis eyes were slightly slanted. He had a vacant slightly idiotic expression. He was unable to talk. He was in his own world. He had no bladder or bowel control. He had a constant cold.

Treatment  Session 1 (November 22nd – December 2nd 2004) After just 4 days of acupuncture, the following changes were seen: He had started to chew his food. His stools had a foul smell already. His cold was slightly better. There was a slight change in the face as expression had come in—though it was sad. His rage had literally been unleashed.  Session 2 (April 4th – April 15th 2005) For the first 3 days, he was in a rage. After the 4th day, he took the needles well. His father came to spend a weekend with him and noticed the change in his face which he felt was very obvious. He developed 2 ulcers on his palate and was vomiting a great deal. He was on Electral. After this session, his face looked more normal and serene. His mother reported the following changes at home after the 1st session: He was more active. He now had good bladder and bowel control. His IQ had improved, and he answered appropriately. His memory had improved and he remembered where he kept things. On the phone, he said hello and bye.  Sessions 3 (31st October 2005–11th November 2005) There was difficulty giving him needles. On the 5th day, his tongue was sticking out and dribbling was present with difficult breathing. By the 7th day, he was taking acupuncture better and was more relaxed. He drank juice and was smiling and recognized his mother. His mother was overjoyed and excited about this change. He ate 2 chapattis for the 1st time and was at ease. Remarks: He is relaxed, happy and at ease and his mother is happy. He is good at sports and enjoys school. This child could not come back as the mother took him to another state and they both settled there away from her in-laws and others. No one seems to know her address.

JANE was 3 ½ years when she came to our centre. She was a cesarean section baby. She cried but was hypotonic. She was kept under light. Her chromosome karyotyping showed Trisomy.

Observations Her movements were slow. She was hypotonic. She got colds and coughs often. She could not speak—says only 1 or 2 words. When angry, she said “No”. She had actions for passing urine and stool. Her tongue stuck out.

Treatment  Session 1 (October 3rd – October 14th 2005) She took the points fairly well with some sedation Changes seen after the 1st session: Her face had changed. Her colds were much less. She had become friendly and affectionate. She was speaking more and the words were becoming clearer.  Session 2 (January 23rd – February 3rd 2006) She was cooperative and fairly quiet with minimum sedation. Changes observed after this session: She was able to take care of herself like dressing herself. Her vocabulary was increasing and she was able to say a rhyme by herself. She had changed into a sweet natured girl. Remarks: She did not return as the mother said the pediatrician told her to stop the sessions and only take her for physiotherapy.

DAPHNE was 8 years old when she came to the centre in November 2005. She was a full term normal delivery. She did not cry after delivery. Though she had mongoloid features, her chromosome analysis was not done. So she was requested to do the analysis and return. Her hair was taken for homeopathic medicine transmission. Her karyotyping done on 24th December 2005 showed Trisomy.  Mother’s history during the pregnancy The mother said that she underwent a great deal of trauma during her pregnancy as she was living in her in–laws house. There were perpetual fights and harassment. She has shifted now.

Observations She had a cough and cold constantly. She had a mongoloid face which was marked. She had delayed milestones. She did not talk at all, but made some sounds.

Treatment  Session 1 (January 9th–January 20th 2006) She was able to take the acupuncture without much difficulty and only mild sedation. Changes after the first session: Her face had become normal. She was happy and smiling. She was attempting speech. She had made friends with other children and played with them.  Sessions 2 (April 17th– April 28th 2007) She took the acupuncture well with very little sedation Changes observed during this session: The change in her face was quite marked. She was calmer and joined other children for play. She was trying to articulate and said a few words. She was more alert and energetic now. She was able to follow instructions now and look after herself. She is eating and sleeping better than before. Remarks: The mother said she would not be able to come for further sessions as it is not possible for someone to come with the child from so far.

NAOMI arrived in our centre on April 3rd 2006. She was 3 years old. Her chromosome analysis showed Trisomy.  Mother’s history We noticed that the mother herself was slightly mentally retarded. She told us that she is an orphan and does not remember her own mother. As a young child, she did menial work for a family and was badly beaten and traumatized till another family saved her and eventually got her married.  Mother’s history during the pregnancy Early in her pregnancy, she started bleeding per vaginum (P V) and a doctor treated her with a hormonal medication and did not tell her she was pregnant. When she changed her doctor, she was told she was pregnant and was asked to stop all the medicines. She has 2 older girls who go to school. She is unable to tell us any more than this.

Observations The assessment done at the Goa Medical College Rehabilitation Centre at age 1 year and 9 months is as follows: She only babbles. She does not respond when she is called. Her IQ is 53. She crawls but cannot walk, even with support. She is able to sit unsupported, but cannot stand. Her thyroid tests were done, and are within normal limits. The Echo Doppler showed a small ASD with a left to right shunt. Observations at our centre She could not stand unsupported. She was only able to crawl. There was much dribbling of saliva. Her mouth was constantly open, and her tongue stuck out. She was totally unaware of her surroundings, of people, and her mother. She had a vacant look and was living in her own world. She could only drink milk and was unable to eat solid food. She had a constant cold and chest congestion.

Treatment  Session 1 (April 3rd – April 12th 2006) She was able to take the acupuncture for 10 days. For the first 3 days, only the back points were given on the UB meridian. By the 3rd day, Naomi was aggressive and restless. In spite of sedation, her energy needed 2 persons to hold her. For the next few days, she took acupuncture but was restless during the acupuncture, in spite of sedation. By the 10th day before she left for home, the following changes were seen by all those who were with her in the centre and those with whom she was living: She was now eating porridge and also some bread. She had started eating rice and fish which she refused before. She also drank water. She held her head up straight. The dribbling had stopped and her mouth was closed. The face had changed and was expressive, not empty and blank. She was aware of her surroundings and was alert, and responded to calling and to those around her. The face had changed and was expressive, not empty and blank. She was able to follow instructions and ask for what was needed. She was now able to stand and also to walk though unsteadily when she holding hands with persons on either side of her. She was only able to sit up before acupuncture. These changes were seen before she left for home, and the mother was grateful, and said she would bring her as often as needed. I really began to be more aware of a mother’s feelings when I saw the children show recognition of the mother after the first acupuncture session and the mother’s joy.  Session 2 (July 31st–August 11th 2006) During this session, she was quiet and cooperative, and needed minimal sedation. The mother reports the following changes have taken place in the last 3 months after her 1st acupuncture session: The child was now able to walk with very little support. She understood what was being said to her and was able to say a few words herself. She still had chest congestion and a runny nose. Her aggression and stubbornness had increased.  Session 3 (April 9th–April 20th 2007) The following changes were seen between August 2006 and April 2007. The child was now able to walk and run entirely on her own. She was able to drink by herself from a cup, and eat normally. She was friendly with other children and quite sociable. She responded to people and situations appropriately. A repeat echocardiogram at the same centre showed the heart was within normal limits. Her face was normal and she did not have the features of a Down’s child. Remarks: To our dismay, the child did not come back as the treating pediatrician told the father that the child would die early if acupuncture continued. We need to remember that these are poor villagers who would not think of challenging the pediatrician, but would rather look up to him. We have had a message from people in the neighborhood however that the child is going to school and is happily adjusting. .

VIJAY VIJAY was 12 years old when he came to the centre. His chromosome analysis showed Trisomy.  Mother’s history during the pregnancy The mother said she was upset during her pregnancy with this child as she had failed an exam she had taken.

Observations He had delayed milestones. When there was a crowd, he started dribbling urine. His face had a slight mongoloid appearance. He was abnormally fearful. He was frightened of everything and people. He would not ride a bicycle. His speech was poor.

Treatment  Session 1 (April 17th–April 26th 2006) It was difficult to give him acupuncture because of his fear. After a few sessions, he cooperated better. Changes seen after the 1st session: His fear was much less as he could take needles better and be at ease. According to his father, he was now able to ride a bicycle. His speech was much clearer. His face had improved in appearance.  Session 2 (October 27th–November 3rd 2006 ) Changes seen since the last acupuncture: He had improved obviously as he is more ready to take acupuncture. This time his face had improved very much. He was not passing urine during acupuncture. He even danced for the group which shows that he had shed his fear. Remarks: His father did not think he needed anymore acupuncture. He was happy with the changes that had taken place.

JOSEPH was brought to our centre when he was 8 months old.  Mother’s history during the pregnancy His mother reports that she is an angry, hot tempered woman. Throughout her pregnancy, she vomited constantly, and only took homeopathic medicines for vomiting. She was working at the computer throughout her pregnancy. The baby was delivered by cesarean section as the fetal heart rate had suddenly increased. Breast feeding was not possible regularly as the mother was not producing enough milk. It is important to note that according to the parent’s report, Joseph does not like his mother’s milk.

Observations His chromosomal study showed Trisomy 21. He had a squint with slit eyes and a mongoloid face. His expression was vacant and he was not aware of his surroundings. He could not raise his head or sit up, even with support. He had a constant cold, cough, and watering of the eyes. His mouth was always open and his tongue stuck out slightly with slight dribbling. At night, he was restless and constantly rolling about. He was extremely constipated. He was undiagnosed for about a month and after that his chromosomal study was done.

Treatment  Session 1 (October 22nd – November 2nd 2007) Since he was only 8 months old, only back points were given on the UB meridian on the back of the trunk of his body and on the back of the thighs and legs. These points were attached to an acustimulator. His mother reported the following changes on the 10th day. He was sleeping much better at night and not rolling about like he did before. He was aware of his parents and other people around, and turned his face to them when they called out to him. He started to pass stools more regularly without any suppositories or other medication. He sat up better with support and did not flop down like before. He was able to hold his head up for a longer period of time. He was making some sounds and seemed to be attempting speech. He was becoming aggressive and cranky, which was not apparent before.  Session 2 (January 10th – January 31st 2008) This time a few more points were given on the front of the body as well. He took the needles fairly well. After the session, the mother reported: Joseph was quite active and energetic. His constipation had disappeared. He was able to sit up with help. His tongue stayed in the mouth most of the time. His front 2 teeth had appeared. The face had changed completely and there was expression on the face. He no longer looked like a Down’s child. Remarks: Unfortunately for this child, both the parents are working—the mother for 12 hours and the father for 16 hours and there is no one to bring the child for further treatment. So they stopped the treatment and went for physiotherapy once a week on Saturdays.

MOSES was brought to our centre in January 2007 at 3 years of age. His chromosome study showed Trisomy  Mother’s history during the pregnancy This pregnancy was unexpected, and came at a time of financial crisis. The husband had to resign as he was not paid for months. Her father had expired and she was having difficulties with her brother, and was very angry at this time. Her husband discussed the possibility of abortion, but she decided against abortion. There was difficulty, sadness and anger during the first 3 months of pregnancy. But in the 4th month, she pulled herself together and started to sing and talk to Moses. However in the 7th month, she undertook a difficult journey to the south of India from Shillong. When she returned, her doctor found the child’s head engaged and advised total rest. This was not possible for many reasons. By the 8th month, the child was delivered by cesarean section and the mother was hemorrhaging profusely and not expected to live. However she survived. The child could be brought to the mother only after 3 days for breastfeeding.

Observations He was able to walk only with support. He only made some sounds, but could not speak. He had frequent colds and coughs. He had loose stools quite often. Bed wetting was frequent. There was constant lacrymation from the left eye. There was a small ASD. He loved food and was able to eat by himself though clumsily. He had plenty of energy and threw things around, but slept a lot. His mouth was always open and his tongue stuck out. He dribbled constantly. He had a mongoloid face.

Treatment  Session 1 (January 29th 2007) He finished 10 days of acupuncture. His mother reported the following changes when she returned home. After a long train journey, he was ok and had no tummy upset. This was unusual for him as after any train journey, he would fall ill. From then on, he no longer had tummy upsets. He started to pass stools more regularly without any suppositories or other medication. Since he left the centre, he has not had colds or a runny nose for 5 months. He has started walking and is more confident about walking since April 2007, 3 months after the acupuncture. When his mother was away, he was confident about relating to people. His face had changed, and he looked more normal. There was expression in his face. Drooling had reduced considerably.  Session 2 (June 2007) Moses took acupuncture for 15 days. When he arrived, we noticed he had a cold and a blocked nose. His mother reports that after this session: His aggression had decreased and he did not throw things around. He no longer hit his head on a wall when denied anything. He was getting up fresher and more alert after his afternoon nap. Drooling had stopped completely. However he scratched his legs constantly. His face had a lovely appearance and expression. He had started talking a lot but the words were not very clear.  Session 3 (January 2008) During the session, he had foul smelling stools. He now walked confidently and without any help. His pronunciation was a little clearer. His colds were much less. He was alert and aware of his surroundings and people. He no longer looked like a Down’s child. e related to people better than before. Remarks: Since his pronunciation was still not clear, we suggested he has a thorough hearing check up as in all probability, he is verbalizing only what he hears. We lost touch with this child as the family moved to another state where he was put in school with other children for stimulation. Due to time constraints, the mother was unable to bring him to the centre. Eventually we were sad to hear the child died of a severe cold and chest infection.

ROGER was brought to our centre in March 2008 .He was 11 years old. His chromosome study showed Trisomy21. He was delivered by cesarean section at 7 months gestation as the umbilical cord was around his neck.  Mother’s history during the pregnancy His mother reports that after the birth of their first child who is a normal girl, now 24 years of age, she had 5 abortions. The doctors did 5 surgeries to correct her uterus. This child was not planned and this caused a lot of tension between husband and wife. The mother thought of an abortion but her husband disagreed. This upset the wife and caused her tension.

Observations His mother reported the following about him. His milestones were delayed and he only started walking at 3 years. He did not speak fluently and answered in monosyllables. He was not friendly and liked to be alone. He was stubborn and angry. He threw things around in anger and was exceptionally angry when teased. He was afraid of the dark. He beat other children and had to be taken out of school for this reason. His tongue stuck out slightly and slight dribbling was present.

Treatment  Session 1 (March 7th–March 25th 2008) Even though he was given a sedative and a painkiller, he was aggressive and resistant, and only a few points could be given on the legs. Surprisingly, changes still took place and his facial expression and appearance changed in spite of only a few needles. Changes seen towards the end of the session and reported by both parents are: He was cheerful and his aggression had reduced considerably. He was aware of his surroundings and recognized all of us at the centre. There was an attempt to speak fluently. He wished us all good morning.  Session 2 (August 3rd–August 21st 2008) His mother who is a nurse reports that the following changes have taken place at home since his last acupuncture. His mother reports that after this session: His fear had decreased considerably and this was quite noticeable. He now went to the toilet by himself, and was able to wash himself, needing no help like he did before acupuncture. The decrease in aggression was remarkable, and instead of beating other children, he started making friends. He now thought before answering a question. He dressed himself correctly and started taking an interest in clothes. His pubic hair has grown, though he is shy about it. He talked more than ever before and seemed to be making sense. Remarks: Both parents were pleased with his progress and have come all the way from a distant state for his acupuncture treatment.  Session 3 At the end of 15 days of acupuncture, his parents have already reported the following changes. His moustache had started growing. He was now able to form full sentences when speaking. He was not only interested in the clothes he wore, but also in the color combinations. His face now had a loving appearance, and he was handsome. However he had not bonded with his mother. This was evident as when she tries to hold him, he pushes her away. Remarks: We keep in touch through friends as the family stays far away. So far the boy is doing well.

KABIR arrived at the centre on March 23rd 2009 at 3 ½ years. His was a normal delivery. On the 6th day, his bilirubin shot up to 21 mgs%, and was given an exchange transfusion. When he was 6 months old, he was diagnosed as a Down’s child. The karyotyping showed an unbalanced Robertson translocation with 1 normal 14 chromosome and 2 normal 21 chromosomes. The other 14 and 21 have the translocation. His mother has a Robertson translocation between14 and 21, but is not affected. His father has a normal chromosome picture. At 6months of age, his T3 and TSH were out of range. So he was put on thyroxin for 1 year. The child development centre at the KEM hospital diagnosed him as a Down’s child with slight autism.

Observations He had a constant cough and cold. He also had a blocked nose. He was hyperactive. He did not make any eye contact. He hit other children. He bit his own arm. His milestones were delayed. He only began walking at 2 years.

Treatment  Session 1 (March 23rd – March 31st 2009) He was restless for the first 3 days, but very willing after that. Changes seen during and after the 1st acupuncture: His cold improved and by the 8th day, it disappeared. He was calmer. He responded to his parents at the first call, whereas before they called him 5 times before he responded. He was making vigorous attempts to speak. His muscles were getting firmer. He was aware of his surroundings. He understood more gestures and responded to people. However he was becoming stubborn and hit his head on the floor if he did not get his way. Later he has joined a school for autistic children and after a month, his father reported: He had grown 2 inches taller. He followed instructions in school very well. He had increased his vocabulary. His awareness had increased very much. However he still had bouts of irritability.  Session 2 (October 5th – October 26th 2009) He looks forward to the treatment and settles himself on the bed. Changes seen after this session: He had grown still taller than before. He lifted a 5 kg bag of sugar and kept it on the table. His teacher was very pleased with him. His vocabulary had vastly increased. The teacher felt he could go to normal school on alternate days. From January 2010, he will go to normal school Remarks: Since his mother was pregnant again, she, according to custom, went to her mother’s place and took the boy with her to another state.

MARY came to our centre on January 25th 2010. She was 1 year 4 months old at the time. Her chromosome study showed typical Trisomy. When she was delivered, the doctors said the external features were those of Down’s syndrome. She had slight jaundice which cleared with phototherapy. She also had red spots on her skin—these cleared after 1 month. She was not gaining weight and was flaccid. She was able to raise her head a little only after 6 months. She was constantly getting colds, fever and coughs. She was not able to sit up even with help.  Mother’s history during the pregnancy She had trauma of the left eye and this was making her tense as it continued during her pregnancy. She was angry throughout her pregnancy as she disagreed with what the mother-in-law was asking of her—to take care of the older child who was running around. All this was stressful for her. She was irritated and angry all through the 9 months.

Observations at oour centre The child had a mongoloid appearance. She had a cough and cold. She could barely lift her head. Her tongue was protruding out all the time. She was in her own world, and not aware of others around. She had labored breathing.

Treatment  Session 1 (January 27th – February 12th 2010) She took the needles fairly well with mild sedation. The points given were on the back and the front and arms and legs. Changes were noticed just a few days after acupuncture was started. The changes noticed were: Her squint was less. Her tongue was protruding less. She was making some sounds. She was happy and aware of those around her. She was not rolling about as before during sleep. Her face had changed and she looked more normal now. According to the father, she was pretty now. Her stool was always black in color, but it had changed to brown. She was even trying to lift her back. Her breathing was no longer labored but nearer normal. According to the father, she was more energetic after acupuncture, aware of her surroundings, listening to sounds and making some sounds herself. Remarks: The parents were very happy with the changes and especially the change in her facial expression. This child has been referred to our sister institution as our centre is in another state and it was difficult for the family to travel. The child is getting acupuncture and craniosacral work and is doing well.